For Patients & Families
Whether you're newly diagnosed or years into your journey, these resources are organized to help you understand, communicate, and take meaningful steps forward.
Understand your diagnosis
Plain-language explanations of morphea, scleroderma, and what the differences actually mean for your care.
Prepare for your appointments
Know what to ask, what to bring, and how to leave each visit with a clear next step.
The Basics
These two terms get used interchangeably online, but they are not the same condition. Understanding the distinction is one of the most useful first steps.
A localized form of sclerosing skin disease that affects the skin and underlying tissue, but not the internal organs. Subtypes vary widely, and knowing yours matters.
Learn about Morphea →A systemic condition that can involve skin, blood vessels, and internal organs. Early recognition and specialist care are especially important.
Learn about Scleroderma →What type do I have? What should I monitor? What's my follow-up plan? Arrive prepared and leave with a clear next step.
View question guide →Appointment Guidance
Appointments can feel overwhelming. These prompts help patients and families get clarity and leave with a plan.
Write down your symptoms, when they started, and what makes them better or worse. Bring a list of all medications including supplements.
"What is my specific diagnosis?" / "What should I watch for?" / "Who should I call if something changes?" / "Is there a support group you recommend?"
Request a visit summary in writing. Note the follow-up timeline. Write down any new terms you want to research — and bring this site as a starting point.
Support Products
Our provider has added a curated list of non-treatment support products — things that may help with comfort and daily routine. Support is not the same as treatment.