You don't have to navigate this alone
Whether you were diagnosed last week or years ago, this material is arranged to help you understand what you have, talk about it, and take a next step.
Educational use only
Not medical advice. Always consult your clinician for personal medical decisions.
Morphea and scleroderma are not the same
These two terms get used interchangeably online. They are not the same condition, and telling them apart is one of the most useful first steps.
Stays in the skin
Morphea
A localised form of sclerosing skin disease affecting the skin and the tissue underneath, but not the internal organs. Subtypes vary widely, and knowing which one you have matters.
Can involve organs
Scleroderma
A systemic condition that can involve the skin, blood vessels, and internal organs. Early recognition and specialist care are especially important.
Going into an appointment prepared
Appointments can feel overwhelming. These three prompts help you get clarity and leave with a plan.
- Before you go
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Write down your symptoms, when they started, and what makes them better or worse. Bring a list of every medication you take, including supplements.
- Questions to bring
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What is my specific diagnosis? What should I watch for? Who should I call if something changes? Is there a support group you recommend?
- After your visit
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Request a visit summary in writing and note the follow-up timeline. Write down any new terms you want to look up later — and bring this site as a starting point.
Support products
A curated list of non-treatment items that may help with comfort and daily routine. Support is not the same as treatment.